Research & Scientific Institutions
Yale School of Medicine, LEITH Lab
MCM partners with the LEITH Lab at Yale School of Medicine, where founder Lakeia Nard serves on the advisory board. Together, we're building better care and access for families affected by rare and neurodegenerative disease, especially in historically underrepresented communities.
GeneDx
MCM partners with GeneDx to bring genetic testing education directly to families through community workshops that explain what genomic results actually mean for a child's care.
Milken Institute
MCM draws on the Milken Institute's resources and initiatives to advance equitable access to care and research for underrepresented children.
Purdue University & Indiana University, Wellcast
Through the Wellcast collaboration, MCM works with Dr. Bridgette L. Kelleher of Purdue University and the IU Institute for Human Health & Wellbeing to develop virtual health support for caregivers of children with neurogenetic conditions.
Funders & Grant Partners
Chan Zuckerberg Initiative
The Chan Zuckerberg Initiative awarded MCM a $250,000 Catalyst Grant to fund research into pediatric ALS, accelerating our search for answers.
Kenneth Rainin Foundation
The Kenneth Rainin Foundation donated $10,000 in direct support of MCM's scientific research.
Felix E. Martin Jr. Foundation
The Felix E. Martin Jr. Foundation awarded MCM a $5,000 grant supporting Neurodiversity Day in Muhlenberg County, a community event advancing inclusion for children with autism and neurodevelopmental differences.
National Advocacy & Alliance Organizations
Citizen Health
MCM has partnered with Citizen Health to give families a secure way to manage their health information and contribute to rare disease research, including storing medical records, tracking symptoms, and sharing their stories.
Global Genes
MCM is a proud partner of Global Genes. Founder Lakeia Nard serves on the Global Genes Alliance Leadership Council, helping shape national strategy for rare disease patient advocacy.
National Organization for Rare Disorders (NORD)
MCM is a member organization of NORD, the leading independent voice for the rare disease community in the United States.
IAMALS
MCM partners with IAMALS in the fight against pediatric ALS. Founder Lakeia Nard serves on the Many Shades of IAMALS council and received the Mary Abeska Spirit Award for her advocacy on behalf of children and families affected by ALS.
Rare Disease Diversity Coalition (RDDC)
MCM partners with the Rare Disease Diversity Coalition to advance equity in rare disease diagnosis, treatment, and research for communities of color.
Community & Direct Service Partners
United Way & Kynect
MCM partners with United Way and Kynect to connect families directly to essential community and public benefit resources.
NOWINCLUDED, powered by Acclinate
MCM partners with NOWINCLUDED to help fund and co-host community events that engage underrepresented families in research and health equity conversations.
Local & Regional Partners, Muhlenberg County, KY
SOAR, Parents of Autistic Children
A local parent-led organization partnering with MCM to support autism families in Muhlenberg County.
Muhlenberg County Schools
MCM partners with Muhlenberg County Schools to bring neurodiversity awareness and inclusive programming directly into the local school community.