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Gathering Families, Advancing Change

Melanin Children Matter hosts events that support families facing rare disease, pediatric ALS, and neurodevelopmental conditions like autism, with a focus on Black and Brown, rural, and medically underrepresented communities. Our events include awareness days like Neurodiversity Day in Muhlenberg County, Kentucky, advocacy and medical literacy webinars, and school partnerships that bring neurodiversity education directly into classrooms. Whether in person or online, every event is built to connect families, build advocacy skills, and expand access to research and care.

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Upcoming Events

New events are added throughout the year, from in-person family gatherings to online advocacy trainings for the rare disease and neurodiversity community. Nothing's on the calendar right now, so join our email list to be the first to know when the next one drops.

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Past Events

Medical Advocacy Academy Event Flyer

Medical Advocacy Academy
Saturday, August 16, 2026

Live on Zoom

Naming Our Power Flier

Naming Our Power: Rethinking Language in Science Series

June 30, 2026

NeuroDiversity Fun Day Flier

Neurodiversity Fun Day

June 21, 2026

Greenville, KY

Advocating as a person of color in the rare disease space

Advocating as a Person of Color in the Rare Disease Space

May 28, 2026

Live on Zoom

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Laser Quest for Hope: In Honor of Rare Disease Day & King'Nazir

February 1st, 2026

Owensboro, KY

Rare Advocacy Exchange

Harnessing Your Values to Fuel Your Leadership Strategy

March 12, 2025

B&W Gala Flier

Black & White Gala - Rare Disease Day

February 27, 2025

Owensboro, KY

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