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United for a
brighter future. 

At Melanin Children Matter, we're dedicated to servicing children, healing families, and educating society while enhancing awareness surrounding childhood rare diseases and resources for autism.

HOW WE HELP

Empowering Change,
One Child at a Time

Championing Hope: Our Commitment
to Children and Families

At Melanin Children Matter, we champion hope for children and families facing rare diseases. Through support, education, and advocacy, we empower resilience and inspire optimism. Join us in making a positive impact on every child's journey.

Servicing Children

Comprehensive support for children with rare diseases.

Healing Families

Resources and guidance for families facing challenges.

Educating Society

Raising awareness and guidance for families facing challenges.

Funding Research

Support for research to advance treatment options.

Our Core Values

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Equity in Action

We challenge systemic barriers in research, care, and diagnostics to ensure every child - regardless of race or ZIP code - receives timely, compassionate, and culturally informed medical support.

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Lived Experience Leadership

We believe that the voices of parents, patients, and communities should drive change - not be an afterthought. Our work is led by those who live it every day.

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Science with Accountability

We invest in ethical, community-centered research and advocate for biospecimen ownership, data justice, and transparency in genetic discovery.

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Early Access Saves Lives

We work to end delayed diagnoses by improving early screening, supporting inclusive biobanking, and funding direct access to evaluation and intervention.

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Healing as Resistance

We acknowledge the grief, trauma, and resilience in our communities. Our programs center healing, hope, and honoring the legacy of the children we fight for.

Our Leadership

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Lakeia Nard

Founder & CEO

Lakeia's passion for advocacy was shaped by her own experience losing her youngest son to SPTLC2 pediatric ALS. She is committed to improving the lives of families of color living with rare conditions.

Our Core Values

Our Mission 

Melanin Children Matter Inc. is committed to transforming healthcare access, equity, and representation for medically underrepresented children - particularly Black and Brown youth impacted by rare diseases, autism, and neurodevelopmental conditions. We fund research, accelerate diagnosis, support families, and amplify the voices of those too often ignored in medical systems.

OUR INSPIRATION

Empowering Change,
One Child at a Time

King'Nazir Gates, despite facing unimaginable challenges from a young age, embodied resilience, joy, and an unwavering spirit that inspired those around him. His journey, marked by misdiagnoses and the harsh reality of a rare and fatal disease, underscored the urgent need for support, awareness, and resources for children of color facing similar battles. King'Nazir's infectious smile and indomitable courage in the face of adversity served as the catalyst for the creation of 'Melanin Children Matter.' His legacy of strength and perseverance continues to guide our mission to advocate for marginalized communities, ensuring that no child or family feels alone in their fight against pediatric illnesses. Through 'Melanin Children Matter,' we honor King'Nazir's memory by amplifying the voices of those often overlooked, and working tirelessly to create a world where every child, regardless of race or circumstance, receives the support and care they deserve.

HOW WE HELP

Empowering Change, One Child at a Time.

Servicing
Children

Healing
Families

Educating
Society

Funding
Research

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SUPPORT OUR CAUSE

Make a Difference

Your donation helps us provide vital support services, resources, and advocacy for children and families facing rare diseases and autism. Join us in making a difference today. 

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